I met Stephanie in 2009 when I signed up to participate with Team in Training (TNT) to complete my very first mini-marathon. Signing up was was a big deal for me at the time as I was not athletic and I was definitely not a runner. (I actually hated to run and now it's more like a love-hate relationship.)
When you sign up for TNT they don't just set you free. They give you a coach (Shout out to Nathan!), a training plan, and a mentor to help you with anything you may need. I was blessed to have Stephanie as a mentor. She not only encouraged me in my running but was also there to help with my fundraising. I had thought about bailing not thinking I could finish or raise the funds, but she was right there to encourage and even help with whatever I needed. She helped me cross that first finish line.
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| 2009 - Morning of the Indy Mini Stephanie is on the far left in the black hat, Coach Nathan is opposite in a white hate. |
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| 2010 - Morning of the Indy Mini Once again, Stephanie is on the far left in the black hat, to the right of her is my friend Erika and Coach Nathan. |
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| 2011 - At breakfast after a training run. We were more of a "I run to eat group"
Christine, Me, and Stephanie
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| 2011 - Stephanie's going away party. Erika, Stephanie, Me |
Stephanie's Story
My name is Stephanie. I’m a runner. I didn’t used to be a runner. I used to be a person who really didn’t do much of anything but walk once in a while. I used to be a person who liked to think of herself as being ‘athletic’, but really never got out and did anything.Then I lost my oldest sister to cancer – Acute Myelogenous Leukemia… the one you really didn’t want to get because the survival rate was pretty slim. She was 42. She had a 13 year old girl and a 10 year old boy. She had a husband. She had two sisters, and a mom and a dad, and cousins and aunts and uncles and nieces and nephews. She was not perfect – who is? But she was pretty amazing. And in a 14 month time warp, we lost her. Just like that. I can safely say that we all pretty much miss her a LOT.In the spring of 2008, when I got yet another postcard in the mail for Team in Training, a fundraising arm of the Leukemia and Lymphoma Society, I looked at the events being offered and realized one of them was in San Francisco (one of my sister’s favorite cities) and that this event was being held on what would have been her 50th birthday (October 19, 2008.) I think I was getting a wake-up call from heaven to get off my butt and do something. I decided that maybe it was time. Time to stop making excuses: of having babies and small children, of not enough time to train, of too much work to do, and “how in the world can I raise a few thousand dollars?”...pick a reason. So I signed up for the Nike Women’s Marathon. And if you’re going to go at all, you might as well go big. So I bypassed the half marathon and dove in to the full marathon – 26.2 miles. Me. The not-really-so-athletic person.Do you know what I found out? Everyone can be an athlete. Not only did I train, and successfully (well, there were some unexpected knee issues along the way during that first race) complete a full marathon – and it did take me a while - but I realized that runners aren’t all tall, thin, muscular people. Along the course I ran with, I passed and I was passed by all shapes and sizes; fast and slow; wheezing and singing; joyous and pained; walkers and sprinters. And everyone celebrated everyone else for being out there and giving it a shot. And everyone celebrated the efforts being made by so many to help fund the Leukemia and Lymphoma Society.Five years later, I’m training for my seventh Team in Training event (one Olympic length triathlon, one 100 mile bike ride, and now six full marathons.) This will be my third Nike Women’s Marathon. I’m probably stronger and healthier than any time in my life (short of my kid-hood perhaps.) I’m 48. I’m six years older than my sister was when she died of blood cancer. I guess I owe it to her to make the best of it, and to continue the fight that she is no longer around to participate in.I would like to raise at least $3000 this time around. What does this money fund? Why would you want to spend money on something you may have no connection to? Is it worth it?Here are some stats:THE POWER OF YOUR MONEY:$1,000 supports one week’s salary for a medical researcher who may discover key information to developing curative treatments for blood cancers.$500 allows 10 patients to log on to a web cast and hear the latest information in treatment for their disease.$500 is the cost of a CT scan.$200 provides a Family Support Group Program for one year for a patient and their family.$150 allows 5 patients to make a First Connection with a trained peer volunteer.$150 provides a blood cancer patient with financial assistance for one year.$100 provides 3 patients access to an information teleconference.$75 is the average cost of tissue typing to become a bone marrow donor.$40 is the cost of sending a comprehensive packet of information for children with cancer.$35 pays for transportation expenses for a patient living in Northern California’s most rural areas to treatment at a comprehensive cancer center.$25 covers a single prescription co-payment.$5 is the cost of sending a newly diagnosed patient information about support and their disease.And here’s the really cool stuff….did you know this?!Targeted therapy RESEARCH
Discovering the molecular abnormalities that cause particular types of blood cancer has been useful in diagnosis and risk stratification, and as foci for new “targeted drug” development. LLS-funded investigators have helped advance molecularly targeted treatments that can selectively kill blood cancer cells versus normal cells. Many of these new treatments benefit not only blood cancer patients, but also patients with other diseases. For example:Ø Gleevec® was developed and FDA-approved for patients with chronic myeloid leukemia (CML), including children. It is now also approved for the treatment of patients with Philadelphia chromosome positive cases of acute lymphoid leukemia (ALL), and for patients with a rare form of stomach cancer. Gleevec is being tested for patients with other cancers, including breast, nerve, brain, prostate, lung, thyroid and ovarian cancer, as well as mesothelioma and melanoma. Related, even more potent drugs, Sprycel® and Tasigna®, have now been approved for patients who do not benefit from Gleevec and are also being tested against a wide range of cancers.Ø Rituxan® was the first FDA-approved, anti-cancer antibody drug, developed for patients with B-cell non-Hodgkin lymphoma (NHL), including diffuse large B-cell and follicular B-cell lymphoma. Rituxan is now used to treat patients with many forms of lymphoma, chronic lymphocytic leukemia (CLL), ALL and myeloma. It is also approved for treating patients with severe rheumatoid arthritis, and being studied as a treatment for other types of autoimmune diseases and cancers, and for chronic graft-versus-host disease, a serious long-term complication of bone marrow / stem cell transplantation.Ø Velcade®, Thalidomid® and Revlimid® were developed and FDA-approved for patients with myeloma and are also helping patients with some forms of Hodgkin and NHL. One or more of these drugs are now being tested for patients with CLL, acute myeloid leukemia (AML) and ALL, myelodysplastic syndromes (MDS), colorectal, head-and-neck, kidney, thyroid, liver, lung, pancreatic and prostate cancers.Ø Dacogen® and Vidaza® are revolutionary new drugs that target small chemical, “epigenetic” additions on cancer-associated genes. These drugs are approved for MDS patients, can be safely used even in the frailest patients, and are also being developed for patients with ALL, AML, CML, CLL, and NHL, as well as for patients with kidney, colorectal, thyroid, head and neck, lung, prostate and ovarian cancers, other advanced solid tumors and melanoma.So you are not just helping blood cancer patients and researchers. You might be helping any number of patients with any number of diseases by funding ground breaking research. It might be one of your own relatives that you are helping. It might be yourself. It might be someone you don’t even know.So help out. Get off the couch. Make a donation. Get involved. Do it because you have a personal connection. Do it before you have a personal connection. Become an athlete. I did.
If you would like to help Stephanie meet her goal or give to a great cause, please go to her Team in Training website and consider donating. No donation is too small.
Additionally, if you were touched by her story, please consider sharing this post with your friends and/or family. Thank you all so much!
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